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Natalie Goldstein, Media Relations Manager: (720) 777-3970
Elizabeth Whitehead, Media Relations Specialist: (720) 777-6388
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Media Relations


Gracie's Family Hopes to Educate People About Sturge-Weber Syndrome


Gracie Sue Manley suffers from Sturge-Weber Syndrome, a rare neurological and skin disorder. The condition affects her health and her appearance, but the little girl remains funny and friendly, and she's unafraid to tell others "she was born this way." Sturge-Weber's most obvious manifestation is a port-wine birthmark that covers the left side of her body. 

Learn more about the Neuroscience Institute at Children's Colorado.

Read about Gracie, also known as a "superstar" by her doctor at Children's Colorado.