Rett Syndrome: Signs and Symptoms

Contact Info

How to make an appointment at the Rett Clinic
Please have your primary care provider or Children’s Colorado doctor contact the Rett Clinic at (720) 777-4363 or email rettclinic@childrenscolorado.org.


Rett Clinic
(720) 777-4363
rettclinic@childrenscolorado.org


What are the signs and symptoms of Rett syndrome?

The age when Rett syndrome begins and the severity of its symptoms can vary. Most children with Rett syndrome develop normally until 6 to 18 months of age. Then, the rate of developmental progress beings to slow down.

Loss of developmental skills

Children with Rett syndrome start to show loss of developmental skills, such as communication skills and the ability to use their hands. Some kids repeatedly wring or rub their hands together or clap, which are common symptoms of the condition. Children also develop difficulty walking, and the growth of their head slows below normal.

After this period of loss of developmental skills, children’s cognitive skills generally begin to stabilize. Individuals with Rett syndrome may become more interactive with others and may survive into adulthood, although they will continue to be challenged by developmental disabilities throughout their life.