Tuberous Sclerosis Complex: How We Treat

The Tuberous Sclerosis Clinic at Children’s Hospital Colorado

Tuberous Sclerosis at Children's Hospital Colorado

The Tuberous Sclerosis Clinic has a multidisciplinary team to provide medical, genetic, neuropsychological, dermatological and social support for tuberous sclerosis complex (TSC) patients and their families.

During your visit to the clinic, your child will see a pediatric neurologist, dermatologist, genetic counselor and neuropsychologist. Our social worker and community alliance volunteer will also provide supportive counseling and can assist patients and families with obtaining resources and support within the community. This appointment will last about three hours.

Our TSC Clinic participates with the TS Alliance to offer their TSC Clinic Ambassador Program. This program pairs a Community Alliance volunteer with our clinic to help families affected by TSC, especially those newly diagnosed, deal with the emotional challenges of the disorder. Clinic Ambassadors share their personal experience with TSC, provide local and regional resource information, and inform them about TS Alliance Community Alliance activities.

Follow-Up Clinic for Tuberous Sclerosis

Our follow-up clinic provides ongoing care for your child’s medical, psychological and social needs. During yearly follow-up visits, your child will be evaluated by our multidisciplinary team to evaluate the progression of TSC and create a treatment plan to address any new physical or behavioral developments.  Our social worker and community alliance volunteer will also provide supportive counseling and assist with obtaining resources and support within the community. Follow-up visits also last approximately three hours.

Why choose Children’s Hospital Colorado for tuberous sclerosis complex?

At the Tuberous Sclerosis Clinic at Children's Colorado, we have an entire team of pediatric experts working to provide multidisciplinary care to children with TSC. We’re also working to further research efforts that may one day lead to better treatment and cures for TSC.

Additionally, our hospital’s location on the Anschutz Medical Campus enables us to provide comprehensive care with a focus on education and research for both children and adults. We collaborate with adult neurologists at the University of Colorado Hospital and School of Medicine to care for patients with TS throughout childhood and into their adult life.

Sending medical records before your appointment

It is important that we review all medical records including any diagnostic tests prior to your visit. If you have records from outside Children's Colorado, please mail them to us prior to your child’s appointment. Please provide x-rays (MRI, etc.) on disk and mail to:

Children's Hospital Colorado
Tuberous Sclerosis Clinic
13123 E. 16th Ave., Box B155
Aurora, CO 80045