Anna and John J. Sie Center for Down Syndrome
Anna and John J. Sie, with their granddaughter
and Jim Shmerling (president of Children's), at
the opening of the Sie Center.
The Anna and John J. Sie Center for Down Syndrome at Children's Hospital Colorado was established thanks to a generous gift from the Anna and John J. Sie Foundation. Our clinic officially opened its doors in November 2010 as part of the Linda Crnic Institute for Down Syndrome at the University of Colorado School of Medicine.
Care, information and resources for our community
The Sie Center for Down Syndrome provides the highest quality of comprehensive care to children with Down syndrome by coordinating medical care, along with speech, physical and other therapies. We also serve as a resource for families and primary care doctors by providing up-to-date information and support to parents who have received a prenatal diagnosis of Down syndrome.
Get the facts about Down syndrome.
Why choose the Anna and John J. Sie Center at Children's Hospital Colorado?
The Sie Center provides the best medical and therapeutic intervention available for children with Down syndrome in Colorado and surrounding states. As part of the Linda Crnic Institute, the Sie Center helps advance the total care of children with Down syndrome by providing excellent medical care, therapy, research and advocacy.
What makes our program unique?
Our team of providers has more than 60 years of combined experience in caring for children with Down syndrome and developmental disabilities. We have some of the top pediatric specialists in the nation who are actively involved with teaching at the University of Colorado School of Medicine, which in 2011 was ranked #5 in the nation by U.S. News & World Report. We also consult with some of the premier pediatric subspecialists in the country to improve the care of children with Down syndrome and develop state-of-the-art research.
In addition, we’re working toward becoming the first translational research program for children with Down syndrome. That means the Sie Center will take cutting-edge discoveries straight from our research lab and use it to help patients. Learn more about research at Children’s.
Services offered for children with Down syndrome
At the Sie Center , our services include evaluation, consultation and therapies for infants, children and teens with Down syndrome. We see patients from the prenatal phase of life, up to age 21. By coordinating our care with other clinics at Children's Hospital Colorado, we have an entire team of pediatric specialists working together to provide the best possible care for your child.
Watch a video about Down syndrome and a local fundraiser that raises awareness.
What to expect for your visit
Prior to your first appointment, we will contact you to review your child and family’s needs. When you come to the Sie Center for Down Syndrome at Children’s, our multidisciplinary team will meet with your family and child. A developmental pediatrician, physical therapist, pediatric nurse practitioner, speech therapist and social worker will work together to assess your child. A feeding specialist and a registered dietician are also available for some appointments. Meet the team at the Sie Center.
At the conclusion of the visit, your family will receive useful and up-to-date information, as well as resources and recommendations to optimize your child’s development and medical care. We will also share this information with your child’s primary care doctor.
Lastly, we’ll arrange periodic follow-up appointments based on your child’s needs and your parental concerns. To help make your visit to Children’s as convenient as possible, we will try to coordinate combination appointments with other subspecialists during the same visit or over a period of a few days. Get resources and more information.
Care from experts throughout the hospital
At the Sie Center, your child receives a full spectrum of care from experts right within our hospital. As part of our multidisciplinary approach to care, the Sie Center works closely with:
Learn more about the Global Down Syndrome Foundation Symposium Series on Nov. 2-3 (.pdf)
