Pediatric Cancer Survivorship Resources
CureSearch: Educational and support resources from the National Childhood Cancer Foundation and the Children’s Oncology Group. Includes long term follow up guidelines.
American Childhood Cancer Organization: Includes discussion of late effects and lists available, comprehensive follow up programs. Phone: 1(800) 366-2223
American Cancer Society: Information on cancer prevention, nutrition, and has a chat room, provided by the American Cancer Society. Phone: 1(800) ACS-2345
National Coalition of Survivorship: Advocacy information for cancer survivors.
National Cancer Institute: General cancer prevention information, screening, testing and causes. Phone: 1(800) 4-CANCER
fertileHOPE: Addresses fertility issues in cancer survivors.
Teens Living with Cancer: Get facts on cancer, dealing with life, body and school issues, staying healthy, support and blog with other teens dealing with cancer.
Ped-Onc Resource Center: Information on survivorship and late effects of cancer, including extensive scholarship information. Also learn where to find a kidney guard to protect your single kidney and more.
I’m Too Young for This - Cancer Foundation: “i[2]y” exists to ensure that every young adult affected by cancer is given access to the best age-appropriate support they are entitled to in order to get busy living at every stage of their survivorship. Get free stuff like online and offline social networking events, adventure retreats, chat rooms, forums and blogs, camping excursions, fertility advocacy, peer counseling, scholarships, financial aid, happy hours and more!
Planet Cancer: An online community of young adult cancer survivors who share their own experiences with others facing similar situations.
Vital Options International: Dedicated to supporting young adults with cancer. The Group Room is a weekly radio talk show that’s all about cancer.
The Sam Fund: Financial assistance for young adult survivors of Childhood Cancer.
Cancer Survivor Project: An organized, international community of long-term cancer survivors and their friends working together to improve the lives of children and adults after cancer. This page is authored by members of the long-term survivors ACOR list.
Support groups and camps
The Teen and Young Adult (TAYA) group meets the second Tuesday of the month at 5:30 p.m. at Children's Hospital Colorado. For more information, please call Tommi at 720-777-6308.
Camp Wapiyapi is for children ages 6-17, it is held on the following dates at the Covenant Heights Conference Center near Estes Park, Colorado. Email aaron@wapiyapi.org or call 303-534-0883 for more information.
- June 6-11, 2010
- June 13-18, 2010
First Descents is an outdoor adventure and kayaking camp is for people 18-39 years old. Call 970-926-2444 for more information.
