Heart Resources for Families at Children's Hospital Colorado
We’re here to support you with the care and information you need before, during and after your visit to the Heart Institute. We’ve compiled helpful information and links related to pediatric heart disease, some of our favorite patient stories and information about our support programs for families of children with heart conditions.
Cardiac Kids networking group
Cardiac Kids is a networking group for the families of patients at Children’s Hospital Colorado with heart disorders. Members understand the hardship of learning that your child has a serious heart condition and how helpful it can be to talk to someone who has been through the same experiences. Cardiac Kids provides one-on-one connections, information resources and opportunities to meet other parents and children with heart disease. Learn more about Cardiac Kids.
Parents' Resource Guide and Journal
Members of Cardiac Kids have developed a resource guide and journal to help you by sharing their experiences, emotions and what was most helpful to them. This book is a must-have for any parent or caregiver who has just received a diagnosis, or for those parents living with a child’s heart condition. Order the journal or read an excerpt.
Heart organizations and websites
American Heart Association
The American Heart Association website is a great resource for parents and includes a special section on heart health for kids. The local Denver affiliate office has a variety of informative booklets on the heart and heart health and also offers educational programs, classes and various fundraising events throughout the year. Contact the local Denver chapter at (303) 369-5433.
The Congenital Heart Information Network
The Congenital Heart Information Network website provides information, resources and support for families and health professionals. It also has information about joining various email support groups.
Little Hearts is an organization that has cardiac support groups organized in several states.
The Lindsay May Fund is designed to provide short-term assistance to heart patients and their families. Referrals to the program are made by the medical and nursing staff. The fund may be used for transportation costs, emergency food and lodging expenses and other special needs. Please ask the Heart Institute for more information.