At Children’s Hospital Colorado, we understand that the effects of a life-threatening diagnosis like cancer can have a large impact on the entire family.
That’s why patients and families are at the center of everything we do: from our Welcome Coordinator who will greet you upon arrival, to helping you make treatment decisions and find available resources.
Support for the whole family
Some of the resources and conveniences we provide at the Center for Cancer and Blood Disorders include:
Outpatient treatments (at one of several infusion centers or with your referring doctor) to allow patients and families to stay close to home whenever possible.
Psychologists, social workers and child life specialists to provide emotional support through programs like Beads of Courage, Youth and Pets Survivor (also called YAPS, a pen-pal program that pairs cancer patients with dogs who have survived the same disease), sibling day camps and family support evenings. See a list of overnight and day camps for cancer patients, siblings and families.
A Wellness Program to help families understand the impact of a cancer diagnosis and to find ways of coping.
- Genetic counseling to help patients and their family members understand how genetics impacts their health and cancer risks with personalized discussion of the likelihood of specific genetic conditions based on the personal and family history, options and logistics for genetic testing, and targeted medical management strategies for prevention and/or early detection of future cancer(s).
A Family Resource Specialist who coordinates financial respite for families, including resources surrounding transportation, medication/insurance, lodging and other financial concerns directly impacted by patient’s diagnosis and ongoing intensive treatment.
Where to stay while you’re here
Families needing long-term accommodations in Aurora have direct access to private apartments at Brent’s Place
, a “safe-clean” housing facility specifically designed for immunocompromised patients, such as those who have undergone bone marrow transplantation
The Ronald MacDonald House
also offers local accommodations in a facility that houses up to 45 families a night. It has three large kitchens, laundry facilities, TV lounges, play areas indoors and out, computer rooms and a patio.
Accessing materials and information
Multiple sources of educational materials, information and resources are available online for patients and families. There are national organizations that are diagnosis-specific, federal and state programs, organizations offering resources and support, and national/local foundations – all of which may be accessed via the Internet.
Many of these resources have specific eligibility criteria for use. Because of this, we recommend that you contact your medical team for guidance on obtaining medical information and contact a social worker on the team for help accessing information on resources, financial assistance and support information.
Additional resources for families
There are many foundations and programs with great websites including:
Children's Hospital Colorado Family Health Library
The Family Health Library provides information in the broad areas of parenting, child development and also medical illnesses in children. The Library is located on the first floor of the hospital and is open to families of patients, as well as parents, educators, healthcare professionals and children. Books can be checked out by anyone, and can be returned through most public libraries in Colorado.
Children’s Oncology Group
The Children’s Oncology Group partners with research scientists from around the world to understand the causes of cancer and find more effective treatments for the children, adolescents and young adults with cancer. The Children’s Oncology Group provides key information to help support children and their families from the time of diagnosis, through treatment and after.
CureSearch for Children's Cancer funds and supports children's cancer research and provides information and resources to all those affected by pediatric cancer.
Through Children's Hospital Colorado's website, you can create your own webpage that will make it easy to update family and friends on how your child is doing. Only those people whom you invite to your CarePage will be allowed to view the site – it is secure and personal.
Colorado Kids Cancer Association
Provides detailed information about camps, financial assistance resources, educational resources, lodging and much more.
2bMe is the online component of the Look Good…Feel Better® program. It is targeted toward adolescents and young adults ages 13-17 who have cancer to help them deal with the possible appearance-related, social and nutritional side effects of treatment.
Other helpful websites:
Get resources for kids and pediatric cancer survivors.