October 11, 2012

Two-year-old Romanian EB Patient Sent to Children’s Colorado on ‘Humanitarian Parole’

Pacific Palisades Patch

In 2009, in Bârlad, Romania, Raul was born with one of the most debilitating rare genetic disorders called Epidermolysis Bullosa (EB), a skin disease that can create blisters and shearing and disfigurement, among other painful ailments.

In Romania, Raul’s caretakers loved him and took care of him in the best way that they could, but he needed a medical team with experience in EB healthcare. Thanks to a concerned volunteer in Raul’s community, he was taken to Children’s Colorado to receive charity care on Humanitarian Parole—a program that allows someone to visit the United States for a temporary period of time due to a compelling emergency.

Read what Children's Colorado's Dr. Anna Bruckner has to say about Raul's condition.

Learn more about our Regional Epidermolysis Bullosa Center.

Contact the Media Relations Staff

Maps and Directions

Recent News

  • Helping Get Zzz's May 21, 2013 Twenty percent of all children suffer from some type of sleeping problem, and the causes range from poor sleep habits, behavioral problems, to underlying medical conditions. Whatever the cause, the impact can be disruptive to children and their families.
  • Kawasaki Disease…How Common is it? May 21, 2013 Kawasaki Disease is not a well known disease, but it is the leading cause of acquired heart disease among children in the United States.
  • Lego Expands Hospital Display May 20, 2013 LEGO Master Builders were hard at work inspiring patients to be anything they wanted to be as they worked to build the East Tower and western expansions to the existing LEGO replica of Children’s Hospital Colorado.
  • G-Tube Clothing for NICU Babies May 20, 2013 A Children's Colorado volunteer, Georgia Lallo, or "Grandma Georgia" as patient families like to call her, knows how stressful dressing a premature infant can be. Which is why Grandma Georgia creates custom g-tube clothing for our NICU babies.
  • May 2 from 9-4: Ask Our Experts About Outdoor Family Fun April 30, 2013 Ask our nationally ranked pediatric experts your questions about outdoor safety topics – from bike safety to playing outdoors with asthma. Thursday, May 2 from 9 a.m. to 4 p.m.

View More…