Two-year-old Romanian EB Patient Sent to Children’s Colorado on ‘Humanitarian Parole’
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In 2009, in Bârlad, Romania, Raul was born with one of the most debilitating rare genetic disorders called Epidermolysis Bullosa (EB), a skin disease that can create blisters and shearing and disfigurement, among other painful ailments.
In Romania, Raul’s caretakers loved him and took care of him in the best way that they could, but he needed a medical team with experience in EB healthcare. Thanks to a concerned volunteer in Raul’s community, he was taken to Children’s Colorado to receive charity care on Humanitarian Parole—a program that allows someone to visit the United States for a temporary period of time due to a compelling emergency.
Read what Children's Colorado's Dr. Anna Bruckner has to say about Raul's condition.
Learn more about our Regional Epidermolysis Bullosa Center.