How is Saethre-Chotzen syndrome treated?
A thorough evaluation by the experts at our Craniofacial Center will be undertaken. Your child may also see specialists in consultation to better diagnose and treat his or her particular condition(s). Together we will create a comprehensive treatment plan for your child.
The main concerns in the early treatment planning for children with Saethre-Chotzen syndrome have to do with the brain and vision.
The premature fusion of multiple sutures in the skull may cause restriction on the growing brain. This constriction can cause increased intracranial pressure. In order to release the pressure, surgery on the skull may need to be undertaken within the first year. This may be in the form of cranial remodeling or distraction osteogenesis, depending on the specific needs of the child. If there is no evidence of increased intracranial pressure, the surgery to correct craniosynostosis is usually undertaken between 6-12 months.
Timing for the surgeries to correct the eyelids and syndactyly (webbing) of the fingers can be planned according to symptoms and severity.
Learn more about how the Craniofacial Team works.