Children's Hospital Colorado

The Connection Journey: Hypoplastic Left Heart Syndrome (HLHS)

Our Experienced Family

Jaden

Karla, Derick and Jaden have been through quite a journey with HLHS, including three surgeries, tough recoveries and renewed hope for a long and happy life.

Our New Family

Jaxon

Kara, Kelly and Jaxon are just beginning their journey with HLHS. They're searching for answers about the process and the future they can expect.

Our pediatric experts can tell families a lot about their baby's hypoplastic left heart syndrome (HLHS) diagnosis and the treatment to come. One thing they can't tell them: how it will feel.

That's why we connected a family just diagnosed with HLHS with a family who's been there — to answer questions, to shed light and to offer hope — from diagnosis to surgery to recovery. These conversations heal. Watch them on the following pages.

The journey in stages

1. HLHS diagnosis

Hearing your baby has a serious condition like hypoplastic left heart syndrome can be devastating. Learn how our families found a path to hope.

2. HLHS surgeries

Babies born with HLHS need three surgeries – the Norwood, the Glenn and the Fontan – before they're 3 years old. Find out about the surgeries from families who have been there.

3. Living with HLHS

HLHS can be repaired, but it never goes away. Learn about the prognosis as well as tips for coming to terms and moving forward.

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Find a doctor

Browse and connect with world-class congenital heart surgeons at Children's Colorado.

Start searching
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Meet more patients

Read inspiring stories from HLHS survivors and patients living with other heart conditions.

See their stories
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Helpful resources

Discover resources and tools other families have found helpful through their journeys with HLHS.

Find what you need

"He's going to be doing things a normal kid does."

Karla, Jaden’s mom

Partnership with the University of Colorado School of Medicine

Children's Hospital Colorado partners with the University of Colorado School of Medicine, where many of our physicians and care providers serve as faculty.

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