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Karla, Derick and Jaden have been through quite a journey with HLHS, including three surgeries, tough recoveries and the renewed hope for a long, happy life.
Kara, Kelly and their son Jaxon are just beginning their HLHS journey with us. And while Jaxon is just weeks away from his second surgery, Kara is worried that it will change his personality. Together, they're searching for answers about the future they can expect.
Hearing that something might be wrong with your baby is devastating; you want as many answers as you can get. These families received options from doctors at other hospitals that they wouldn't accept. But Children's Colorado gave them a path of hope.
"Whenever I wanted to see him it was a two-minute walk."
Get an in-depth condition overview, treatment options and what to expect during recovery.Learn more
Read more about the three surgeries in the HLHS journey.Learn about the surgeries
Within days of birth, a patient will undergo the first of three heart surgeries on their HLHS journey. Both families share their sons' first days and what it was like to part with them to undergo surgery.
As a patient with a congenital heart defect, Jaden receives care from a multidisciplinary team of doctors and clinicians through the Complex Congenital Heart Disease and Development (CCHDD) Clinic, seeing them all in one visit. His team continuously evaluates his condition and coordinates care with Jaden's pediatrician. It's just one way we're ensuring Jaden has a long, happy and healthy life.
Rumors of low HLHS outcomes were dispelled when this parent saw outcomes at Children's Colorado.Read the story
Managing a condition like HLHS can be overwhelming. Here's what you might forget, or not even know to ask.Get the list
When a patient with HLHS reaches four to six months old, it's usually time for the Glenn surgery. It's a tough proposition for families who are finally settling into routine at home to imagine their child going back into surgery.
Available 24/7, experienced pediatric nurses can help you decide if symptoms warrant a trip to the hospital.Get the number
Developed to support families navigate the challenges of life with a cardiac illness.Learn about it
The third and final surgery, the Fontan, marks the beginning of some stability in the lives of patients with HLHS. Karla talks about how Jaden's energy went up after they returned home, and how he was no longer a "blue baby."
"The first thing I remember after we got home was that he ran around the park three or four times."
This Clinic specializes in treatment following the Fontan procedure, from after surgery through adulthood.Get the whole story
Having a multidisciplinary team means you see all your doctors in one appointment.Learn more
Karla gives Kara hope for what lies ahead. Derick talks about Jaden's newfound energy, and Jaden proudly shows off his scars.
Our surgical survival rate makes us one of the top pediatric heart hospitals.
Browse and connect with world-class pediatric specialists at Children's Colorado.Start searching
We paired newly diagnosed families with others who have been through the journey.See their stories