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Hypoplastic Left Heart Syndrome (HLHS)

Kara holds her son Jaxon, who is being treated for HLHS at Children's Hospital Colorado.

Giving hope a heartbeat

Our pediatric experts can tell families a lot about their baby's hypoplastic left heart syndrome (HLHS) diagnosis and the treatment to come. One thing they can't tell them: how it will feel.

That's why we connected a family just diagnosed with HLHS with a family who's been there — to answer questions, to shed light and to offer hope — from diagnosis to surgery to recovery. These conversations heal. Watch them on the following pages.

Meet the families

Kara, Kelly and Jaxon

Our new family

Kara, Kelly and Jaxon are just beginning their journey with HLHS. They're searching for answers about the process and the future they can expect.

Karla, Derick, Jaden and baby

Our experienced family

Karla, Derick and Jaden have been through quite a journey with HLHS, including three surgeries, tough recoveries and renewed hope for a long and happy life.

The HLHS journey

HLHS diagnosis

Hearing your baby has a serious condition like hypoplastic left heart syndrome can be devastating.

Learn how our families found a path to hope

HLHS surgeries

Babies born with HLHS need three surgeries – the Norwood, the Glenn and the Fontan – before they're 3 years old.

Find out about the surgeries from families who have been there

Derick and Jaden

Living with HLHS

HLHS can be repaired, but it never goes away. Learn about the prognosis as well as tips for coming to terms and moving forward.

Hear more about life with HLHS

"He's going to be doing things a normal kid does."
Karla, Jaden’s mom

Would you like a second opinion?

If you have received a prenatal diagnosis, are considering treatment options or just want to feel more confident about your treatment plan, our fetal care experts are here to help.

Request a second opinion from our Colorado Fetal Care Center

Additional pediatric cardiology resources

Partnership with the University of Colorado School of Medicine

Children's Hospital Colorado partners with the University of Colorado School of Medicine, where many of our physicians and care providers serve as faculty.