Children's Hospital Colorado

Living with HLHS

Contact the Colorado Fetal Care Center


An optimistic nod to the future

We are also committed to fostering overall wellness and quality of life for infants, children, adolescents and young adults. Over the past two decades, prognosis, surgical survival and life expectancy for children with hypoplastic left heart syndrome (HLHS) have improved dramatically.

Our families discuss living with HLHS

Here, Karla gives Kara hope for what lies ahead. Derick talks about Jaden's newfound energy, and Jaden proudly shows off his scars.

Living with HLHS

Staying well

After treatment, children with HLHS can go on to live relatively normal lives. Our Wellness Program supports families and helps navigate the challenges of life with a congenital heart condition through clinic visits, and events and activities.

Learn about the Program

Care for a lifetime

When patients reach adolescence, experts in our Adult Congenital Heart Disease Program will help them learn about their heart condition and successfully transition to adult-based care. Should the need for additional treatment ever arise, our congenital heart experts are uniquely positioned to continue their care.

Derick holds his son Jaden, who has hypoplastic left heart syndrome.
"The first thing I remember after we got home was that he ran around the park three or four times."
Derick, Jaden's dad

Additional pediatric cardiology resources

Partnership with the University of Colorado School of Medicine

Children's Hospital Colorado partners with the University of Colorado School of Medicine, where many of our physicians and care providers serve as faculty.