Children's Hospital Colorado

Living with HLHS

An optimistic nod to the future

Over the past two decades, prognosis, surgical survival and life expectancy for children with hypoplastic left heart syndrome (HLHS) have improved dramatically. Here, Karla gives Kara hope for what lies ahead. Derick talks about Jaden's newfound energy, and Jaden proudly shows off his scars.

A closeup of a baby treated for hypoplastic left heart syndrome (HLHS) at Children's Hospital Colorado.

Meet Robert: another HLHS survivor

Rumors of low HLHS survival rates were dispelled when Robert's mom learned about strong surgical outcomes at Children's Colorado. Here, they gave her son a 90% chance of survival.

Read their story

Staying well

After treatment, children with HLHS can go on to live relatively normal lives. Our Wellness Program is here to support families and help you navigate the challenges of life with a congenital heart condition – long after your child leaves the hospital – through both clinic visits and events and activities.

Learn about the program

Care for a lifetime

When patients reach adolescence, experts in our Adult Congenital Heart Disease Program will help them learn about their heart condition and successfully transition to adult-based care. Should the need for additional treatment ever arise, our congenital heart experts are uniquely positioned to continue their care.

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Find a doctor

Browse and connect with world-class congenital heart surgeons at Children's Colorado.

Start searching
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Meet more patients

Read inspiring stories from HLHS survivors and patients living with other heart conditions.

See their stories
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Helpful resources

Discover resources and tools other families have found helpful through their journeys with HLHS.

Find what you need

"The first thing I remember after we got home was that he ran around the park three or four times."

Derick, Jaden's dad
Derick holds his son Jaden, who has hypoplastic left heart syndrome.


Partnership with the University of Colorado School of Medicine

Children's Hospital Colorado partners with the University of Colorado School of Medicine, where many of our physicians and care providers serve as faculty.