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For the latest cutting-edge research, innovative collaborations and remarkable discoveries in child health, read stories from across all our areas of study in Q: Advances and Answers in Pediatric Health.
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Children’s Hospital Colorado
Anschutz Medical Campus
13123 East 16th Avenue
Aurora, CO 80045
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Colorado Fetal Care Center Patient Stories
Advancing treatments to save lives and lifetimes.
Babies come to us before they’re born with some of the most serious fetal conditions possible. And we make sure they can grow into healthy kids, teens and beyond. Read their stories of strength and growth.
Meet the families we've helped
Oliver: Conquering Hypoplastic Left Heart Syndrome
Oliver was diagnosed with HLHS before birth. Thanks to expert care at Children’s Colorado, he’s now a thriving, energetic kid living life to the fullest.
Aleea: Myelomeningocele Warrior
Diagnosed with a severe form of spina bifida before birth, Aleea had fetal surgery and is now a thriving kid defeating expectations.
Avalynn and Aurora: Surviving Twin-Twin Transfusion Syndrome
Avalynn and Aurora were diagnosed with twin-twin transfusion syndrome but thanks to a surgery in utero at the Colorado Fetal Care Center, the twins are now happy and healthy.
Lyla: Thriving After a Congenital Diaphragmatic Hernia (CDH) Diagnosis
With a growing and healthy kid, Lyla’s family reflects on her journey at the Colorado Fetal Care Center with congenital diaphragmatic hernia. Read how our nurses’ expertise and positivity made all the difference.
Lainey: Embodying Resilience Through Congenital Heart Disease
When Lainey was born with congenital heart defects, the team at the Colorado Fetal Care Center helped repair her interrupted aortic arch with surgery. Read more about how our team helped her heal.
Zeke and Zane: Overcoming Long Odds with Expert Fetal Cardiology Care
The odds that Zeke and Zane would have the same heart condition are long. They needed an amazing care team to overcome those odds, and they got just that.
Emma: Conquering Myelomeningocele
Emma’s parents feared that spina bifida would prevent her from living a full life. Learn how our fetal care experts made sure she had no limits.
Emilio: The First Fetoscopic Myelomeningocele Repair at Children’s Hospital Colorado
Emilio and Katarina underwent the first fetoscopic MMC repair at Children’s Hospital Colorado and now they’re back home thriving.
Emma: Overcoming the Odds and Congenital Diaphragmatic Hernia
Emma's family was given a poor prognosis when she was diagnosed with congenital diaphragmatic hernia. See how our experts gave them hope and amazing care.
Evelyn: An Abdominal Condition and Eight Month Hospital Stay Doesn't Stop Her Smiles
Evelyn was born with a condition called omphalocele, a birth defect of the abdominal wall. She spent the first eight months of her life at Children’s Hospital Colorado, with seven of those months in the NICU.
Cecelia: Expert Care for Fetal Heart Block Before and After Birth
A fetal heart block diagnosis before birth changed everything for Cecelia’s family, from their perspective to where they live. See how our fetal cardiology experts helped.
Kendall: How the Center for Gait and Movement Analysis Got Her Back in the Game
Kendall faced twin-twin transfusion syndrome and right-side hemiplegia before she turned one. See how her family and our care team wouldn’t let her fall behind her peers.
Grayson: How Genetic Testing Saved His Life
See how genetic testing and our team’s expertise helped save Grayson from a rare genetic condition and help other kids like him.
Conley Twins: Twin-to-Twin Transfusion Syndrome (TTTS) Survivors and Best Buddies
See how our team helped Kenna and Zoey overcome twin-to-twin transfusion syndrome to develop a near telepathic connection.
Ambrose: Beating Congenital Diaphragmatic Hernia (CDH), and More
Ambrose faced a life-threatening congenital diaphragmatic hernia diagnosis, and that was not all he had to overcome. See how our fetal experts helped.
Charlotte: Surviving a Fetal Omphalocele and Finding Silver Linings
After an omphalocele diagnosis, our fetal care team helped Charlotte’s parents go from uncertain to joyful.
Klay and Kai: How Mono-Mono Twins Overcame Incredible Hurdles
Mono-mono twins Klay and Kai faced several health issues before they were born, but you would never know it if you saw them now.
Eli: Living and Thriving with Congenital Diaphragmatic Hernia (CDH)
Eli was given a 50% chance of surviving. See how he overcame the odds and is now thriving in the face of CDH.
Luke and Levi: Unique Surgery Technique Saves Twin Babies
These twins needed urgent surgery before they were born for twin-to-twin transfusion syndrome, but their mom's placenta was incredibly unique and posed a challenge to specialists. Our experts put their heads together and modified the surgery technique to safely treat them.
Liam: Fetal Surgery for Myelomeningocele (MMC) Spina Bifida Repair
Read how the specialists at Children’s Colorado performed fetal surgery in utero to repair Liam’s myelomeningocele (MMC) spina bifida.
Jose Alejandro: Fetal MMC Repair in the Face of a Pandemic
When COVID-19 forced many fetal care centers to close, the Colorado Fetal Care Center stayed open. Learn how our team continued performing lifesaving surgeries like Jose Alejandro's.
Ella: EXIT Procedure Saves Baby with Rare Fetal Tumor
Fetal specialists at the Colorado Fetal Care Center performed a complex EXIT procedure on baby Ella to remove a rare tumor before her birth. Learn about the surgery that saved her life.
Robert: A Different Perspective on Hypoplastic Left Heart Syndrome
Amanda heard rumors about low survival rates for hypoplastic left heart syndrome. Here, doctors gave her son a 90% chance of survival.
John: Myelomeningocele (Spina Bifida) Success Story
JD's parents made a difficult choice when they opted for fetal surgery for their unborn son's myelomeningocele (spina bifida) to prevent hydrocephalus. Learn about their journey.
Eli: Diagnosing Fetal Cardiac Mass
Doctors told Leetal Birger the mass on her unborn baby’s heart was probably part of a devastating syndrome. At the Colorado Fetal Care Center, fetal experts used cutting-edge technology to learn the truth.
Viola: Treating Fetal Heart Block
When Amy Witt learned her unborn baby had heart block, she came to the Colorado Fetal Care Center. See how IVIG therapy helped baby Viola and her family.
Chase: A CDH Survivor Story
Chase was born with congenital diaphragmatic hernia (CDH). Thanks to quick treatment at Children's Colorado, he went home after just 18 days. Read his story here.
Emily: An Impossible Choice and a Journey with CDH
Diagnosed with congenital diaphragmatic hernia in utero, Emily had less than a 20% chance of survival. Learn how the Colorado Fetal Care Center saved her.
Ava: CDH Diagnosis After Birth
Ava's congenital diaphragmatic hernia (CDH) wasn't caught until after birth, but thanks to our fetal care team, she's thriving. Learn what it took.
Peyton: How Prenatal Spina Bifida Surgery Helped Avoid Brain Surgery
Peyton’s myeloschisis, the severest form of spina bifida, put her at risk for acute complications. Fetal surgery was her best chance at a positive outcome.
Emma: Advanced Myelomeningocele (Spina Bifida) Surgery
After a devastating diagnosis of spina bifida, one family turns to fetal surgery to help their unborn daughter, Emma.
Joey and Paul: Surviving Twin-to-Twin Transfusion Syndrome
Learn about a family's will to beat twin to twin transfusion syndrome and how the Colorado Fetal Care Center team created a treatment plan to help Joey and Paul.
Maya and Maleia: Twins Battle TTTS and CHD
These twins, who first survived twin-to-twin transfusion syndrome (TTTS), continued to struggle before their birth. One of the twins was found to have congenital heart disease. After much difficulty, both girls are thriving.
Noah: Despite Lymphangioma Diagnosis, Fetal Surgery Gives Boy a Fighting Chance
Read how the Colorado Fetal Care Center gave Noah a fighting chance in the midst of his Lymphangioma diagnosis. Our fetal care team of specialists gave hope to this family.
Jack: One Family's Journey with Congenital Diaphragmatic Hernia
After her unborn baby was diagnosed with congenital diaphragmatic hernia, mom Lindsay came to the Colorado Fetal Care Center. Find out how she felt about her experience.
Channing Joy: Treating a Congenital Heart Defect
Cari McCoy tells her baby's story of supraventricular tachycardia (or SVT), a congenital heart defect in which the heart muscles are working overtime and, often, uncontrollably.
Mila and Ciela: Twin-to-Twin Transfusion Syndrome Patients Saved by Laser
Nicole Shore had enough to worry about when she and her husband Ari found out they were having twins. She worried about what would happen after she delivered, not before. But when the contractions came on hard at 22 weeks, she worried. Nicole’s twins had developed twin-to-twin transfusion syndrome (TTTS).
Harlowe: Caring for a Rare Cardiac Condition, Before and After Birth
Mariel had an autoimmune condition called Sjogren's syndrome. This condition caused her baby girl, still in utero, to begin having problems. Mariel's daughter's heartbeat dropped to half its previous rate and caused a scare. After birth, the baby was given a pacemaker and is now thriving.
