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Adolescence can be a confusing time for most, even those without a congenital heart condition. Through Children's Hospital Colorado's Adult Congenital Heart Disease Program, we help patients navigate the physical, mental and social changes that come with adolescence and help them make a smooth transition from pediatric to adult-based care.
By supporting CHD patients throughout their teenage years, we can help them achieve success as adults. Prior to their transition to adult care, our cardiology experts help patients with:
We also work with patients to determine if there may be any barriers to care and to provide additional resources to help ensure proper lifelong care.
We focus on providing a smooth transition for adolescent patients living with congenital heart defects. Thanks to our joint program with University of Colorado Hospital, we ensure that these special patients receive coordinated care throughout their lives.
The transition education process can begin in adolescence when the patient is still being seen by their pediatric cardiologist. Our specially-trained transition nurse coordinator begins by assessing the patient's developmental and cardiac educational level. Then, in collaboration with the patient and their healthcare team, we develop a plan tailored to each individual to prepare them to take over their own healthcare as they enter into adulthood. This process can occur over several visits and is flexible enough to change as the patient matures or new issues arise.
Current Heart Institute patients are encouraged to continue their care with the Adult Congenital Heart Disease Program, a joint program between Children's Colorado and University of Colorado Hospital. Our adult congenital heart disease team sees patients at both institutions, so you can be sure you will always receive coordinated care from the same caregivers.
We work closely with patients and families to ensure they understand where they need to go for appointments and care.
Learn more about your visit to the Heart Institute.
The following organizations provide resources and support for teens and adults with congenital heart disease: