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Some children with congenital heart defects (heart conditions present at birth) have only one effective pumping chamber, a condition known as single ventricle heart disease.
Single ventricle heart diseases, such as hypoplastic left heart syndrome and tricuspid atresia, are treated by performing a Fontan operation early in a child’s life. The Fontan operation does not completely repair the heart defect, but allows the child to grow up and a lead normal, active life. However, these children also face health challenges that are best cared for by a multidisciplinary, evidence-based program like the Single Ventricle Clinic at Children’s Colorado.
Specialists in the Single Ventricle Clinic provide expert consultation and treatment of the unique issues that arise after the Fontan operation. For example, the Fontan circulation may affect a patient’s lungs, liver, intestines, bones, blood and other organ systems. Our specialists have expertise in evaluating and treating problems like plastic bronchitis and protein-losing enteropathy. Also, children may have everyday challenges with self-esteem and other issues in school. We have developed ways to manage those issues and others based on current research and clinical experience.
Ours is the only program in a seven-state region dedicated to caring for all the health concerns for kids who have had a Fontan operation. This program is an innovative, new approach to the care of children who have had a Fontan operation.
Our team includes pediatric cardiologists who specialize in single ventricle heart disease. The other subspecialists on the team have a specific interest and clinical experience in Fontan-related problems, and our multidisciplinary team allows us to provide care for all of a patient’s health concerns in one place.
Our program participates in the National Pediatric Cardiology Quality Improvement Collaborative, a national research program for single ventricle heart disease. We are also an auxiliary site for the Pediatric Heart Network Fontan Udenafil Longitudinal Assessment Trial (FUEL).
For more information or to make an appointment, please contact the Single Ventricle Care Program at Single.firstname.lastname@example.org or by phone at 720-777-2943.
Learn more about your visit to the Heart Institute.