Resources for Pediatric and Adolescent Gynecology Patients and Families

Being diagnosed with a gynecologic condition can be difficult for your daughter as well as the family. As a parent, you naturally want to learn as much about the condition as possible and speak with people who have been through similar experiences. We’ve created this list to help you, your daughter and your family understand the condition and learn how to best deal with it and talk about it.

Pediatric and adolescent gynecology patient support groups

Beautiful You MRKH Foundation

Beautiful You is a supportive online support resource that promotes self-esteem and empowers girls and women with Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome, also known as vaginal agenesis. They welcome members from around the world and believe that through their members’ differences, they will find their greatest strengths.

Endometriosis Association

The Endometriosis Association is an organization made up of women with endometriosis and their families, as well as doctors, scientists and others interested in exchanging information about endometriosis. Their ultimate goal is to find a cure and prevention for endometriosis while at the same time providing education, support and research to those affected.

Pediatric and adolescent gynecology patient and family education

North American Society for Pediatric and Adolescent Gynecology (NASPAG)

The goal of NASPAG is to provide multidisciplinary leadership in education, research and gynecologic care to improve the reproductive health of youth.

American College of Obstetricians and Gynecologists (ACOG)

ACOG is a membership organization dedicated to the advancement of women’s healthcare and the professional and socioeconomic interests of its members through continuing medical education, practice, research and advocacy.

Foundation of Women & Girls with Blood Disorders

The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with heavy menstrual bleeding and blood disorders are correctly diagnosed and optimally managed at every life stage.

Save My Fertility

Save My Fertility is an authoritative resource for cancer patients who want to learn more about preserving their fertility before and during cancer treatment. They also provide information and guidance to oncologists, endocrinologists and other healthcare providers concerned with the reproductive health of cancer patients and survivors.

Bedsider

Bedsider is an online birth control support network for women 18 to 29 operated by Power to Decide, the campaign to prevent unplanned pregnancy. Power to Decide is a non-profit organization that works to ensure that every young person has the power to decide if, when and under what circumstances to get pregnant.

Center for Disease Control and Prevention (CDC) - HPV vaccination

The CDC’s website section on the human papillomavirus (HPV) vaccination gives information on when your child should get the vaccine and how it works to prevent cancer-causing infections and precancers.

American College of Obstetricians and Gynecologists (ACOG) – LGBTQ care

ACOG is a membership organization dedicated to the advancement of women’s healthcare and the professional and socioeconomic interests of its members through continuing medical education, practice, research and advocacy. This page provides information about medical care relating to lesbian, gay, bisexual, transgender and queer (LGBTQ) teenagers.

American College of Obstetricians and Gynecologists (ACOG) – Ovarian cysts

ACOG is a membership organization dedicated to the advancement of women’s healthcare and the professional and socioeconomic interests of its members through continuing medical education, practice, research and advocacy. This page provides information and answers frequently asked questions about ovarian cysts and provides some very helpful information.

Peyton’s short journey and happy discovery of pediatric gynecology

Peyton and her mom didn’t know there was such a thing as a pediatric gynecologist until she experienced debilitating pain due to ovarian torsion and met Dr. Tricia Huguelet at Children’s Hospital Colorado.