Connecting families: We frequently connect families with other parents living with their child’s heart defect, and we have a weekly coffee time for new families to meet and chat with current ones. Depending on your family’s needs, we may be able refer or connect you with other hospital and community resources.
Financial services: Our social work team also helps provide information about financial support.
Nutrition services: Registered dietitians with expertise in cardiac nutrition support both inpatient and outpatient areas. They are part of the care team and can answer questions related to general nutrition, growth, tube-feeding and IV nutrition. Our nurses can easily page a dietitian any time.
Mental health support: Our team members come from social work, child life, psychology, spiritual care and medicine. Social workers help families cope with social, financial and psychological needs associated with their child’s illness, as well as lengthy hospitalization and outpatient treatment. Child life specialists use therapeutic play, age-appropriate education and coping techniques to help children or teens and their families (including siblings) adjust and cope with the hospital or clinic setting, chronic illness and the treatments involved. Psychologists provide assessment, consultation and interventions to address developmental, behavioral, emotional, social and academic concerns. Chaplains offer support to children and families of all faith traditions and spiritual expressions.
As a team, we offer support to your child and family throughout the course of treatment into childhood and adolescence. We also offer prenatal counseling and ongoing mental health support to families whose babies were diagnosed with a heart defect before they were born. Additionally, our cardiac neurodevelopmental specialist provides specialized testing for children and young adults with heart disease.