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Children with autism spectrum disorders have impaired communication skills, social interaction and behavior. Autism spectrum disorders (ASD) cause significant impairment in a child's thinking, feeling, language and ability to relate to others.
These conditions usually become apparent before age three and last throughout a person's life, although the core symptoms can vary greatly across individuals and improvement in behavior is usually seen with developmental, behavioral, and educational intervention specific for a child with this diagnosis.
The classification of ASD is changing in May 2013. Previously, children with autistic disorder (commonly known as autism) presented with significant problems in communication and social interactions skills, and with repetitive behaviors or restricted interests. Children who had some but not all of the core symptoms were diagnosed with Pervasive Developmental Disorder, Not Otherwise Specified (PDD, NOS). Children who acquired their language milestones on time and who normal cognitive skills were diagnosed with Asperger syndrome. As of May 2013, we will be using one diagnostic category, Autism Spectrum Disorder for all children – rather than three separate diagnoses.
ASD impairments include delays or problems in three core areas:
There is no single cause of autism spectrum disorders. Genetic factors play a strong role; although these inherited factors are complex, several genes have been shown to increase the risk of developing this condition.
There are other possible contributing causes that have been associated with ASD, such as environmental exposures, infections and toxins. We do know that these disorders are not due to poor parenting.
There have been more children diagnosed with ASD in recent years. However, we don't know if that is because more children are developing the condition, or if increased awareness has made parents and doctors more likely to seek medical and developmental attention and diagnose the condition. The criteria to make this diagnosis also have been better defined through the years.
ASD occur equally in all racial, ethnic and social groups. However, three populations are at increased risk for autism, including:
There are many patient advocacy groups dedicated to increasing awareness, raising funds for research, and creating support groups for patients with autism and their families, including: Autism Speaks, the Autism Society of Colorado, Parent to Parent and Parents Encouraging Parents.
The Centers for Disease Control started First Signs, a parent education program to make sure children with autism and other developmental issues are identified early and get the help they need.
Common symptoms of autism spectrum disorders (ASD) include:
Other "red flag" behaviors may also be present (signifying the need for your child to be screened for an ASD), such as:
Children are screened for autism during their "well child" exam with a primary care physician. During the exam, the doctor will ask about your child's social, verbal and emotional development. If your child's primary care provider thinks there may be an issue, you may be referred to a doctor specialized in child development, like those at Children's Hospital Colorado's Child Development Unit for a more in-depth evaluation.
During a diagnostic evaluation for autism spectrum disorders, a child development specialist will interview you and your child, and then observe your child. During the interview, the healthcare professional will ask about your child's history of developmental milestones that are affected in children with autism spectrum disorders.
During the evaluation, your healthcare provider will engage with your child to look for the following:
Your child will also be tested to make sure there are not any medical conditions that might be causing autism spectrum-like syndromes. These tests may include: hearing testing, lead poisoning testing and genetic screening.
Although there are many concerns about labeling a child with an ASD, the earlier the diagnosis is made, the earlier needed interventions can begin. When evaluating a child, clinicians at Children's Colorado rely on behavioral characteristics to make a diagnosis.
Some of the characteristic behaviors of ASD may be apparent in the first few months of a child's life, or they may appear at any time during the early years. For diagnosis, problems in at least one of the areas of communication, socialization or play must be present before the age of three.
The diagnosis requires a two-stage process. The first stage involves developmental screening during "well child" check-ups; the second stage entails a comprehensive evaluation by a multidisciplinary team. As part of this process, children are diagnosed with an ASD based on a specific set of behavioral criteria. We use two specific "gold standard" measures to help to correctly identify autism: Autism Diagnostic Interview-Revised and Autism Diagnostic Observation Schedule.
Unfortunately there is no cure for autism spectrum disorders (ASD); however, the goal of ASD treatment at Children's Hospital Colorado is to promote social, adaptive and behavioral function.
Treatments derived from the behavioral learning theory have the strongest research support. This type of therapy works to reinforce appropriate behaviors and reduce unwanted behaviors, while also suggesting what caregivers can do to prevent problem behaviors.
Medication can also be used to treat some of the symptoms associated with ASD like attention and hyperactivity issues, anxiety, depression and mood instability, aggression or self-injury, obsessive compulsive behaviors and sleep problems.
Some of our psychologists provide treatment using the Early Start Denver Model, which works directly with children and their families. Some of our providers also provide Cognitive Behavioral Therapy and Behavioral Therapy, to address some of the behavioral difficulties that are often seen with children with ASD.
For children with autism spectrum disorders and other developmental delays, the Neuropsychiatric Special Care (NSC) program at Children's Colorado is one of the few programs in the country that provides a hospital-based level of crisis care, in addition to our outpatient autism clinics that specialize in diagnosing and children with autism spectrum disorders (from the mild to severe).
A variety of healthcare providers from different disciplines at Children's Colorado work together to help kids with autism. For example, our speech-language therapists help children with autism improve their ability to communicate and interact with others and develop their speech and language skills. Occupational therapists help children with autism find ways to acquire and successfully perform everyday tasks at home and in the community. Physical therapists design activities and exercises to build motor control and to improve posture and balance.
Our Next Steps Clinic, run by our social worker, also assists families in accessing available community resources and provides additional types of support.
Our specialists also conduct ongoing research to help improve the lives of kids with autism and their families. Some of our current and past research studies in autism spectrum disorders include:
Certified Pediatric Nurse Practitioner