What are the Crouzon syndrome treatment options at Children's Colorado?
Before providing families with Crouzon syndrome treatment options, a thorough evaluation by the Craniofacial Team will be undertaken. Your child may also see specialists in consultation to better diagnose and treat his or her particular condition(s). Together we will create a comprehensive treatment plan for your child.
The main concerns in the early Crouzon syndrome treatment planning for children with Crouzon syndrome have to do with the brain, vision and breathing.
The premature fusion of multiple sutures in the skull may cause restriction on the growing brain. This constriction can cause increased intracranial pressure. In order to release the pressure, surgery on the skull may need to be undertaken within the first year. This may be in the form of cranial remodeling or distraction osteogenesis, depending on the specific needs of the child.
Surgeries to protect the eyes may be needed. These may include tarsorraphy of the lids or fronto-orbital advancement of the bones of the forehead and upper eyes.
Some children with difficulty breathing will require a tracheostomy. As the child grows, it may be necessary to perform a LeFort III or Monobloc in order to improve the form and function of the face. These procedures can positively affect the ability to protect the eyes and breathe while sleeping. The timing of these surgeries, if needed, is dictated by the severity of your child's symptoms. In late adolescence, the child may require orthognathic surgery to improve facial balance and his or her bite.
Learn what to expect before, during and after surgery.