How is Ehlers-Danlos syndrome treated?
There is currently no cure for EDS. Treatment of EDS varies widely according to the different types of symptoms and the severity of those symptoms. Our multidisciplinary team provides a highly individualized approach to relieve symptoms, with the aim of helping patients achieve the most fulfilling life possible despite their EDS diagnosis.
Why choose us for the treatment of Ehlers-Danlos syndrome?
Currently, our EDS Program within the Special Care Clinic is the only dedicated, pediatric clinical program for care of EDS in the United States. We strive to be at the cutting edge of EDS research and to develop the best treatments for EDS.
Our multidisciplinary team includes pediatric specialists in gastroenterology, neurology, cardiology, allergy and immunology, chronic pain and physical therapy. For children who need additional specialized treatment, we also have pediatric experts in hematology, rheumatology, neurosurgery and orthopedics available.
Our team provides consultation to families and their primary care providers. We also coordinate appointment scheduling for patients who need to see multiple doctors and aim for same-day appointments when feasible. Our care team meets regularly to collaborate and review patient care plans and progress.
How do I schedule a visit?
If your child has been diagnosed with EDS, ask your child's primary care doctor for a referral to the Special Care Clinic at Children's Hospital Colorado. Your child's primary doctor can contact the Special Care Clinic by calling 720-777-6739.
If you suspect, but do not have a confirmed diagnosis of EDS from a geneticist, speak with your primary care doctor about your concerns and consider getting a referral to a geneticist for evaluation.