What is the treatment?
The main treatment for arthrogryposis is therapy. Therapy can be done by an occupational therapist, a physical therapist or both. Therapy usually starts soon after a baby is diagnosed with the condition and may include stretching, range of motion exercises, splinting or casting and assisting with normal every day activities.
Therapists at Children’s Hospital Colorado work with families/caregivers to create a program for each child under the direction of the doctors.
If therapy alone is not enough, some children may need surgery. Surgery is usually done to improve how the joint moves and works. These surgeries may involve the bones, joints, tendons, muscles or other tissues.
What does this condition mean long-term for my child?
Most people with arthrogryposis will live a long life. If the condition is severe and affects the brain and spine, your child may have a shorter lifespan.
Arthrogryposis is non-progressive, which means it doesn’t get worse over time. With treatment, things can improve. Most children will improve their range of motion and ability to move their arms and legs, and do activities of daily life. With therapy, the contractures often improve dramatically.
Why choose Children’s Colorado for your child’s arthrogryposis treatment?
At Children’s Colorado, our surgeons and hand therapists are specially trained to care for children and babies with this condition. Our Arthrogryposis Clinic, part of the Hand and Upper Extremity Program, is the only dedicated clinic of its kind in Colorado as well as the region. Our team of specialists will develop an individualized treatment plan for each child.
The Arthrogryposis Clinic provides:
- Pediatric orthopedic surgeons, rehabilitation physicians, pediatric nurses physical and occupational therapists and social workers who work together to treat all aspects of the child’s health
- Individualized treatment plans that treat each child’s condition and specific needs
- State-of-the-art multidisciplinary clinic, operating rooms and testing equipment that is designed to fit the child’s needs
- Access to child life specialists and social workers that help families emotionally and mentally
Learn more about our Hand and Upper Extremity Program at Children’s Colorado.