How is FOXG1 syndrome treated?
Because of its genetic nature, there is no cure for FOXG1 syndrome at this time. At Children's Hospital Colorado, our treatments are designed to help alleviate your child’s symptoms and to create the best possible quality of life. We see people of all ages for FOXG1 syndrome in our Rett Clinic.
Some treatment approaches include medicines to address possible seizures, gastroesophageal reflux, sleep, movement problems, constipation and breathing problems. Feeding problems may also occur, requiring some children to need supplemental food from a feeding tube. Scoliosis (a curved spine) may also require orthopedic interventions like braces or surgeries.
Physical, occupational and speech therapy is also used to address motor, communication, sleep and behavioral difficulties. Although no cure is available, these supportive treatments help most patients adapt to the symptoms of CDD.
Why choose us for the treatment of FOXG1 syndrome?
Our team has developed a wealth of experience and knowledge about FOXG1 syndrome, and we're recognized as national and international leaders in the field. We strive to develop and provide the most up-to-date care based on research and care guidelines. We participate in the latest clinical trials.
Our sub-specialty providers and therapists come together to evaluate and develop a treatment plan that is tailored to your child's specific needs. Because so many specialties are housed under the same roof at Children's Colorado, we can provide all the care that children with Rett syndrome need.
To make an appointment at the Rett Clinic, families and providers can contact the Rett Clinic at 720-777-4363 or email firstname.lastname@example.org.