Children's Hospital Colorado
Pediatric Urology
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Pediatric Urology

Treatment for Disorders of Sexual Development in the SOAR Clinic

SOAR “Sex Development Outcomes – Achieving Results” Clinic

The SOAR Clinic at Children’s Colorado provides care and support to infants, children, young adults and families affected by a disorder of sex development. The Clinic team addresses physical, emotional and psychological concerns associated with these conditions.

What is a disorder of sex development?

Disorders of sex development (DSDs) are conditions in which the internal sex organs and/or external genitalia develop differently than the typical boy or girl. DSDs occur in approximately one in every 2,000 births. Our Clinic treats disorders like ambiguous genitalia, androgen insensitivity syndrome and clitoromegaly. See a full list of conditions below. 

What causes a DSD?

Sex development begins during pregnancy and continues throughout life. Sex development is complex, and the typical process can change to a less common path at multiple points. The term disorder of sex development (DSD) refers to atypical development.

What to expect at the SOAR Clinic

At the first visit to the Clinic, patients and families meet with members of the care team. The team coordinates a care plan and recommends special testing and treatments. Families are welcome and encouraged to stay for a support group lunch after the clinic appointment.

Why choose treatment at the SOAR Clinic at Children’s Colorado?

Individualized treatment from pediatric experts

The SOAR Clinic provides a team approach to managing the health of patients with a DSD. The Clinic provides comprehensive and individualized care including evaluation, medical and surgical management, psychological counseling, support and education for families. Members of the team coordinate patient care to ensure effective and integrated treatment plans.

Parent participation in decision making

Children’s Colorado encourages parent participation in important health decisions, especially during gender assignment and surgical intervention. We also emphasize age-appropriate education for our patients, because education helps kids become comfortable with their diagnosis and share in decision-making as they grow. Ultimately, our goal is to provide continuous support for patients to help them grow into healthy, confident adults.

Meet our team

The SOAR Clinic includes experts from multiple pediatric specialties who care for babies, kids, teens and young adults every day. Patients see specialists according to their unique care plan.

Our care team includes specialists from the following departments:

  • Pediatric Nursing
  • Pediatric Endocrinology
  • Pediatric Urology
  • Pediatric Genetics
  • Pediatric Psychology
  • Pediatric and Adolescent Gynecology

Specific conditions we treat

In the SOAR Clinic, we treat the following conditions:

  • 46,XX congenital adrenal hyperplasia
  • Complete or partial androgen insensitivity syndrome (AIS)
  • 5-alpha reductase deficiency
  • Disorders of testosterone synthesis
  • Gonadal dysgenesis (partial, mixed and complete)
  • Sex chromosome mosaicism
  • Ovotesticular disorders
  • Vaginal agenesis, aphallia
  • Atypical development of the external genitalia (clitoromegaly or micropenis)

Services offered

Resources

  • AIS-DSD: Support, education and advocacy dedicated to persons with AIS (androgen insensitivity syndrome) and other DSD (differences of sex development).
  • DSD Families: Resources for families with children, teens and young adults who have a DSD.
  • Accord Alliance: Information and education for parents and physicians on the outcomes of care for persons with a DSD condition.
  • CARES Foundation: Support, information and advocacy for families affected by congenital adrenal hyperplasia (CAH).
  • Hypospadias and Epispadias Foundation: Information and support for hypospadias and epispadias conditions.
  • “Disorders of Sex Development: A Guide for Parents and Physicians,” by Amy B. Wisniewski

Here, it’s different.™

A woman is facing four blurred out people.

A Safe Haven for Children with DSD

Read about a mother's journey when her child was treated for a disorder of sexual development (DSD) and the one-of-a-kind patient advocacy program her family embraced.

Emily: Disorders of Sexual Development

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