Children's Hospital Colorado
Pediatric Urology
Pediatric Urology

Treatment for Disorders of Sexual Development in the SOAR Clinic

Sex Development Outcomes – Achieving Results (SOAR) Clinic

The SOAR Clinic at Children’s Hospital Colorado provides care and support to infants, children, young adults and families affected by a disorder of sex development (DSD). The Clinic team addresses physical, emotional and psychological concerns associated with these conditions.

What is a disorder of sex development?

DSDs are conditions in which the internal sex organs and/or external genitalia develop differently than the typical boy or girl. DSDs occur in approximately one in every 2,000 births. Our Clinic treats disorders like ambiguous genitalia, androgen insensitivity syndrome and clitoromegaly. See a full list of conditions below. 

What causes a DSD?

Sex development begins during pregnancy and continues throughout life. Sex development is complex, and the typical process can change to a less common path at multiple points. The term disorder of sex development (DSD) refers to atypical development.

What to expect at the SOAR Clinic

At the first visit to the Clinic, patients and families meet with members of the care team. The team coordinates a care plan and recommends special testing and treatments. Families are welcome and encouraged to stay and join a support group after their appointment.

Why choose treatment at the SOAR Clinic at Children’s Colorado?

Individualized treatment from pediatric experts

The SOAR Clinic provides a team approach to managing the health of patients with a DSD. The Clinic provides comprehensive and individualized care including evaluation, medical and surgical management, psychological counseling, support and education for families. Members of the team coordinate patient care to ensure effective and integrated treatment plans.

Parent participation in decision-making

Children’s Colorado encourages parent participation in important health decisions, especially during gender assignment and surgical intervention. We also emphasize age-appropriate education for our patients, because education helps kids become comfortable with their diagnosis and share in decision-making as they grow. Ultimately, our goal is to provide continuous support for patients to help them grow into healthy, confident adults.

Meet our team

The SOAR Clinic includes experts from multiple pediatric specialties who care for babies, kids, teens and young adults every day. The specialists that a patient will see depends on their unique care plan.

Our care team includes specialists from the following departments:

Specific conditions we treat

In the SOAR Clinic, we treat the following conditions:

  • 46,XX congenital adrenal hyperplasia
  • Complete or partial androgen insensitivity syndrome (AIS)
  • 5-alpha reductase deficiency
  • Disorders of testosterone synthesis
  • Gonadal dysgenesis (partial, mixed and complete)
  • Sex chromosome mosaicism
  • Ovotesticular disorders
  • Vaginal agenesis, aphallia
  • Atypical development of the external genitalia (clitoromegaly or micropenis)

Services offered

Resources

  • American Academy of Pediatrics: information about disorders of sexual development and intersexuality
  • Accord Alliance: resources for parents, caregivers and providers from an organization that works to promote comprehensive and integrated approaches to care that enhance the health and well-being of people and families affected by disorders of sex development (DSD)
  • AIS-DSD: support group that provides support, education, and outreach to foster healthy outcomes for adults, youth, children, and families affected by intersex/DSD
  • DSD Families: resources for families with children, adolescents and young adults who have a DSD
  • DSD Teens: provides information for young people on living with DSD, puberty and growing up
  • CARES Foundation: research, support, and education for families affected by congenital adrenal hyperplasia (CAH)
  • Hypospadias and Epispadias Foundation: information and support for people with hypospadias and epispadias conditions and their families and loved ones

Here, it’s different.™

A woman is facing four blurred out people.

A Safe Haven for Children with DSD

Read about a mother's journey when her child was treated for a disorder of sexual development (DSD) and the one-of-a-kind patient advocacy program her family embraced.

Emily: Disorders of Sexual Development

Related departments

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